Do you ever get overwhelmed with the quantity of information available on the web? Do you wonder where to start when trying to find out about a particular topic? Or where to begin to research for a presentation or project? I have been there. What I have discovered is, that sticking my search terms into google or yahoo yeilds vast and mind boggling results. Now I always start with a few trusted websites. Here, in no particular order, are my top 5 recommendations for childhood disability information:
CanChild is a non-profit research and educational centre located within the School of Rehabilitation Science at McMaster University in Hamilton, Ontario, Canada. Our research is focused on improving the lives of children with a variety of developmental conditions and their families over the lifecourse.
I am a big fan of CanChild. They have great resources for professionals and parents. They have an interesting and impactful research portfolio. The staff and associates are really helpful if you contact them.
The British Academy of Childhood Disability (BACD) is an organisation for professionals working in the field of childhood disability. It’s aims include: to promote the development of quality standards, guidelines for good practice in the field of child development and disability.
BACD website gives acsess to their newsletter archive for free. For most uptodate information and members contacts you can join for an annual fee of £30 or £40. Membership also gives a discount on the ‘Developmental Medicine and Child Neurology’ journal.
Contact a Family is a UK-based registered charity for families with disabled children offering support, advice and information. As well as supporting families the charity supports those who assist the families, including medical and educational professionals, local government workers and health workers.
I find contact a family really useful for condition and rare disease information. They have lots of downloadable parent information and a professionals enquiry service.
PenCRU is a childhood disability research team. We are a partnership between researchers, families and health care professionals. Working together, we aim to ensure that research addresses issues that are relevant to disabled children and their families and results in beneficial new treatments and services.
It’s fantastic to have a UK based children’s disability research team. Pleasingly they are working closely with parents and families as well as professionals. They have a great ‘What’s the evidence?’ section: http://www.pencru.org/evidence/
PubMed is a free search engine accessing primarily the MEDLINE database of references and abstracts on life sciences and biomedical topics. Medline includes bibliographic information for articles from academic journals covering medicine, nursing, pharmacy, dentistry, veterinary medicine, and health care.
If you are search for original papers or systematic reviews PubMed is a really useful free search engine. It searches the Medline database. This gives some protection as the quality of all included journals has been vetted by a medline selection committee.
As ever I’d love to hear from you. Let me know how you get on with the websites I’ve recommended. Join our facebook community Synergy-Now facebook community and pop in and say hello.